EEG DAY

Today went as well as it could...we have to wait for the results...but Nico did his part GREAT!

5:00am we were up and hanging out watching CARS 2 (again).


5:30am- Nico finished eating breakfast--which would be his last meal until after the exam.

7:30am- drank his last milk 

9:00am- drank his last Apple juice

9:30am- We were in the first waiting room all checked-in and ready for our hospital visit

10:30am- we went into the second waiting room where he was weighed and given a SWEET ELEFANT and CLOWN hospital gown. We read some books and played with Talking Tom on mommy's IPHONE.

11:30am we were in the EEG room. On the way there Nico said Hi to EVERYONE he saw...and said WEEEEEEE all the way down the hall as he was rolled on the big "crib" to the EEG room. Everyone laughed and smiled!

12:15pm The EEG started.





1:30pm the test was over. And Nico slowly started to awaken from his little nap. I don't know anything about the test since the TECh didn't say ANYTHING at all (i know he's not allowed to, but still....he could have given me a thumbs up or down at least). On our part, the test went well! Nico was a trooper without sleep and food......it almost seemed like it didn't even phase him!!

He was only upset when they started puncturing his arm to put the IV in (about 10 mins- 3 pokes on two different arms). And then when he got up from the exam he was half asleep half awake for about 15 mins---during that time he was upset at the EEG TECH....but soon after....he was happy as a butterfly. As we left he said bye to all the doctors and nurses and other patients, the elevator, the hallway, and the christmas trees.

My pumpkin bread is such a trooper. I'm so proud of him! When we go home, he wanted to go night night in the Wagon/Train that abuelo made him.

Hopefully tonight Nico can get 2 nights of well deserved rest!! Te amo mi rey!!!

We have to wait about a week or so to get the results and will work from there with the doctors to see what the next step is...but he's doing great! On our way home from the Hospital, Nico and I stopped at Santa Monica Catholic Church to say hi to Baby Jesus and thank you for watching over Nico and all of us. And as we were leaving, Nico said bye bye baby Jesus.

Neurology Update

Please keep Nico in your prayers!

Tomorrow we are going in to the UCLA Hospital to get an EEG with Sedation for Nico. He can't have food 6hrs before, no milk 4 hours before, no water 2 hours before, and has to have no more than 5 hours of sleep the night before---HE IS NOT GOING TO BE A HAPPY CAMPER!!

We are going to get the EEG because about a month ago he had a seemingly unprovoked seizure. The seizure itself is not that dangerous however...it can be a result of other things.

Overview: Many children who experience a first seizure may never experience a second seizure. However, a seizure may be the initial presentation of a more serious medical condition or subsequent epilepsy. Epilepsy is a condition in which a child has 2 or more seizures without a proximal cause for the seizures (unprovoked seizures).

So the doctors who saw him at the hospital in San Diego, his pediatrician, and a pediatric neurologist all recommended that we go ahead and do the EEG to see if there is any seizure activity in his brain that could have caused this event.

However, unless there's LOTS of seizure activity (which they don't foresee there being)--in which case an anti seizure medication would be recommended; there is nothing to do for minimal seizure activity(if it's even found). It will just be for out knowledge....and to help the doctors gather more info.

Giving a definitive prognosis after a single seizure is difficult, but some general rules do apply, based on epidemiologic data. 

Prognosis: In general, children who have a single, short, generalized seizure along with normal neurologic development and normal findings on neurologic examination are estimated to have a 24% risk of having another seizure within 1 year and a 36% chance of having a second seizure within 3 years. In these children, if the electroencephalogram (EEG) is found to be normal, the risk of seizure recurrence is estimated to decrease to approximately 15% within 1 year and 26% within 3 years. If the EEG is found to be abnormal, approximately 41% will have another seizure within 1 year and 56% within 3 years.

It's scary, but like Peter said...don't start thinking crazy things until we have more info...and so I am calm and getting ready to help Nico be as calm as possible for a hunrey, tired, and restless toddler.